NXG Is Rare.
Research Doesn’t Have to Be.

NXG Alliance is a patient-led community for people living with Necrobiotic Xanthogranuloma, a rare condition most doctors have never seen.

With only around 250 patients formally diagnosed, most of what is known about Necrobiotic Xanthogranuloma comes from individual case reports. By connecting patients through our patient interest registry, we are creating the foundation for real research at scale.