NXG Is Rare.
Research Doesn’t Have to Be.

NXG Alliance is a patient-led community for people living with Necrobiotic Xanthogranuloma, a rare condition most doctors have never seen.

With only around 250 patients formally diagnosed, most of what is known about Necrobiotic Xanthogranuloma comes from individual case reports. By bringing the NXG community together, we hope to increase awareness, share knowledge, and help build the foundation for more meaningful research into this rare disease.