About NXG Alliance

NXG Alliance was founded in 2026 after a family member’s diagnosis revealed how much remains unknown about NXG and how urgently more research is needed.

When our family member received his NXG diagnosis in early 2026, there was almost nothing to find. No patient community. Just a handful of online posts and a series of medical papers most people could not interpret on their own. What exists in the research is largely driven by small groups of dedicated physicians working without the patient numbers needed to attract meaningful funding.

If you were recently diagnosed and found this site, that is exactly why we built it. By connecting with the NXG community, sharing information, and helping raise awareness, you can be part of building a better future for every patient who comes after you.